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Join date: Apr 17, 2023
Posts (30)

Jan 16, 2025 ∙ 5 min
The Challenge of Explaining Ehlers-Danlos Syndrome to New Doctors
“Ehler-Danlos what?” It’s a question many patients with Ehlers-Danlos Syndrome (EDS) dread hearing every time they meet a new doctor....
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Dec 3, 2024 ∙ 5 min
10 Signs Your Doctor Doesn't Understand Ehlers-Danlos Syndrome (and What to Do About It)
Living with Ehlers-Danlos Syndrome (EDS) can be challenging enough without the added frustration of explaining your condition to a...
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Oct 22, 2024 ∙ 5 min
Navigating Healthcare: A Guide for Rare Disease Patients and Families
Living with a rare disease can transform the simplest healthcare challenges into complex mazes. For individuals and families facing the...
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