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Our
Story
Get to Know Us
Hi, we’re Lauren and Brent! We created CPCF Ehlers-Danlos to educate, raise awareness, and share our personal journey with this rare condition. Brent has Ehlers-Danlos Syndrome (EDS), and I (Lauren) am his unwavering support team. Together, we’ve navigated the ups and downs of living with a rare disease, and we want to provide a space where others can find valuable information, support, and hope.
We believe no one should face EDS alone. Whether you’re here to learn, share, or simply find comfort in knowing someone understands, you’re welcome in our community. Let’s navigate this journey together.
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