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Writer's pictureBC EDS

Sharing My EDS Journey: From Pain to Hope

Welcome to my blog! I'm sharing my journey with Ehler Danlos syndrome (EDS), along with all the wins and losses along the way. My goal is to provide hope and guidance for anyone also struggling with EDS, and to educate medical providers about the condition so that they can provide better care for their patients.


As I've dealt with EDS, I've seen first-hand how much the healthcare system needs to improve when it comes to treating chronic pain and fatigue. But I'm not giving up. My hope is that by sharing my story, we can all learn from each other and work together towards a brighter future.


To give you a little background on myself, I grew up as a flexible kid without too many issues. I loved sports like wrestling and martial arts, but I did struggle with digestive issues. As I got older, my joints started hurting and I began experiencing chronic fatigue. It wasn't until I cracked my tooth and was prescribed pain medication that I realized how much better I felt when I was on it. This sparked a journey that led to my official diagnosis of hypermobility type EDS, along with Mast Cell activation syndrome (MCAS) and postural orthostatic tachycardia syndrome (POTS).


Since my diagnosis, it's been an uphill battle. But along the way, I've discovered a few things that have helped me manage my symptoms. In my blog posts, I'll be sharing my experiences with different therapies for chronic pain and fatigue. I hope you'll come along and share your own insights in the comments.


Remember, there's no cure for EDS. But together, we can find hope and healing.

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