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Navigating Nutritional Strategies with Chronic Illness

Writer's picture: BC EDSBC EDS

Updated: Nov 10, 2023



Living with a chronic illness, such as Ehlers-Danlos Syndrome, is a challenging journey. It can affect every aspect of your life, from physical to mental health, and your diet is no exception. As someone who has lived with chronic pain and fatigue for years, I have had to explore different nutritional strategies to find what works best for me. I have learned through trial and error that nutrition plays a critical role in managing my symptoms and overall health. In this post, I’ll share my experience with different nutritional strategies to help others in similar situations.



One of the first things I did was to start eating an anti-inflammatory diet. I focused on eating whole, nutrient-dense foods like fruits, vegetables, lean proteins, healthy fats, and whole grains. This eliminated processed foods, which can exacerbate inflammation. I also gave up nightshade vegetables like tomatoes, peppers, and eggplants, which I found triggered my joint pain. Since making these changes, I have noticed a significant reduction in my overall pain levels and stomach issues.


Another nutritional strategy I explored was a low FODMAP diet. Essentially, this diet limits fermentable carbohydrates, which can cause bloating, gas, and other digestive issues for individuals with Irritable Bowel Syndrome (IBS) or other gut disorders. This diet also helped me manage my digestive symptoms, including bloating, cramping, diarrhea, and constipation. However, it's important to note that not everyone with EDS has digestive symptoms, so this may not be necessary for everyone. This diet was also hard for me to follow.


Intermittent fasting is another strategy I have found helpful. Intermittent fasting involves alternating periods of fasting and eating for better glycemic control. For example, I may fast for 16 hours and consume my meals within 8 hours. This has helped stabilize my blood sugar levels, which can fluctuate due to the stress that chronic illness puts on the body's adrenal glands. It also helps me manage my appetite, making it easier to maintain a healthy weight, which can be challenging with chronic illness.


After trying all these diets, I found the foods that work best for me and pretty much eat the same thing every day. I have less stomach issues and better pain tolerance. My diet revolves around eggs, toast, oatmeal, some chicken/shrimp, and low FODMAP veggies or vegetables that are cooked. I don't mind eating the same thing every day as it is better than feeling bad all day.


Supplementation is also a key strategy I have explored. In particular, I have found magnesium, vitamin D, and omega-3 fatty acids to be beneficial. Magnesium helps with muscle relaxation and reducing anxiety, while vitamin D helps support immune function. Omega-3 fatty acids, on the other hand, help with inflammation reduction. However, it's important to consult with a healthcare provider to determine which supplements are appropriate for your individual situation.


Finally, I want to emphasize that it’s crucial to listen to your body and adjust your nutritional strategies as needed. No two people with EDS experience it in the same way, so you need to figure it out what works best for you. It's also important to consult with a registered dietitian or your healthcare provider before making significant changes to your diet, especially if you’re taking medications or have other health concerns.



Living with a chronic illness requires constant management, including managing your nutrition. The right nutritional strategies can make all the difference in improving your symptoms and overall quality of life. By exploring different techniques, such as anti-inflammatory diets, low FODMAP diets, intermittent fasting, and supplementation, you can find what works best for you. Remember, it’s essential to listen to your body and work in partnership with your healthcare provider to create a personalized nutritional plan that meets your individual needs.

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